Aia 40,000 mau kānaka i hānauʻia me kēia maʻi.
I kēia manawa uaʻikeʻoe ua weheʻoe i ke alakaʻi lapaʻau, akā, mai hopohopoʻoe. Ma hope o ka heluheluʻana e lōʻihi ana kou heleʻana ma lalo o ka manaʻo.
No laila,ʻo ka Waardenburg Syndrome he maʻi olakino, a no ka manawa mua iʻikeʻia i ka makahiki 1947,ʻo Petrus Johannes Vaardenburg. No ka hopena o kēia maʻi, hiki i ke kanaka ke hoʻololi i ka puaʻa i ka maka, ua nui a hāpai ka ihu. Hiki i ka mea maʻi ke loaʻa i ka heterochromia o ka iris (ʻoluʻolu o nā lau). ʻO ia ma nā'ōlelo'ē aʻe, he mau maka kona o ka lāhui haole a i ka wā mua, eʻike ana i ke kiʻi me kahi maʻi, e like paha me he mea lā ua hana maikaʻiʻiaʻo ia ma Photoshop. Eia kekahi,ʻo nā kānaka me kēia maʻi e hoʻonaniʻia e nā maka wale nō, akā, ma kaʻili a me ka lauoho (aia kahi poʻo hina i ka lae). ʻO ka lohe pepeiao a me ke kuliʻana paha.
He meaʻono ia i nā manawa a pau i loaʻa i nā poʻe a pau i loaʻa i ka maʻi o Waardenburg nāʻokoʻa likeʻole. ʻO kēia no ka hikiʻana i nā loli ke hoʻololi i nāʻano genes.
1. A inā uaʻikeʻoe i kēia maʻi maʻi, mai hoʻohoha. E hoʻomanaʻo i ka nui o nā mea nūpepa i lilo i mea kaulana iā ia. E nānā wale aku i kēia nani, kahi mea hana make-hanaʻo Stef Sagnati. ʻO kona helehelena ke nānā aku.
2. Aʻo kēia'ōpiopio Abushe'ōpiopio i ka moeʻana i ka star star someday, kahiʻano Beckhamʻelua.
Ma ke ala, i kona wa i hānau ai, ua makaʻu nā mākua i ka makapō o ke keiki. ʻO ka mea mua, he mea weliweli kēia iā lākou, no ka mea, e like me ka nui o nāʻohana Etiopia, ua kūpono nā mākua o ke keiki e pale, a no lailaʻaʻole hiki iā lākou ke loaʻa ka hana. ʻO ka mea maikaʻi,ʻo ka pēpē wale nō ka maʻi i luna. A manaʻo kona makuakāne a me kona makuahineʻo keʻano o kā lāua keiki i kahakahaʻia e ke Akua.
ʻOiaʻiʻo,ʻaʻoleʻo ia i ka manawa maikaʻi. Ua'ōlelo kekahi poʻe hoa papa e loaʻa iā'Asusha nā makaʻeleʻele, nā maka aniani. Ua kapaʻiaʻo iaʻo he monster ... Akā, uaʻike kekahi hanaʻeleʻeleʻeleʻele i kekahi lā, e liloʻo ia i hōkū hulu mele a ho'āʻo i nā kānaka a pauʻaʻoleʻo ia he meli, akā he kanaka kūikawā.
3. Paris Jackson a me nā hiʻohiʻona o ka lani, kahi e make ai nā kānaka a pau.
Ua hōʻike pinepine aku kāna mea hana make-up i keʻano o ka maʻi maʻi genetic o ke kaikamahine a Michael Jackson aʻo kaʻula o kona mau makaʻaʻole ia he leka. ʻOiai ma loko o kahi ninaninauʻana,ʻaʻole iʻaeʻo Paris i kēia maʻiʻo Waardenburg. ʻO kaʻoiaʻiʻo, heʻokoʻa keʻano o nā maka,ʻaʻole e loaʻa nā hōʻailona'ē aʻe o ke kaikamahine no ka maʻi.
4. Paipai nā Volunteers Paipai i kahi kiʻi paʻi o kekahi kaikamahine liʻiliʻi me ka maʻi o Waardenburg.
ʻO kekahi o nā mea manawaleʻa ma kaʻenehana kaiaulu hāʻawi i kahi kiʻi o kahi pēpē Senegaleia, e hoʻomaopopo anaʻo Sura (ʻo ia ka inoa o ka nani keʻokeʻo) he mau maka o ka nani nani. He kōkoʻomaʻa keʻokeʻo kona ma kona lima'ākau a, he pōpō,ʻo ia ke kuli ...
5. A ua lilo kēia Brazilian 11 makahiki i hīmeni ma keʻano o nā keiki.
I kaʻike muaʻana o ka makuahine o Catlen i kāna keiki hānai me nā maka sapphire, ua manaʻoʻo iaʻaʻoleʻo kāna keiki ia, ua paniʻiaʻo ia. I kēia lā ma Palalala, ua lilo ke kaikamahine i'ōkoʻona'ōpio i hōʻike i ka honua e hiki i ka nani ke hoʻohiolo i nāʻano koʻikoʻi a lanakila i nā pilikia a pau o ka nohona.